FOP Registry
- 다운로드수 103
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(0명)
분류 | 의료 |
---|---|
버전 | 1.0.6 (2.20241025.0) |
연령 | 3세 이상 |
업데이트 | 2022. 7. 8. |
금주 다운수 | 1 |
누적 다운수 | 103 |
개발사 | Digital Infuzion, LLC |
다운로드 | |
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상세정보
The FOP Registry is the largest and most indepth collection of FOP clinical and medical information and is independently operated by the IFOPA The FOP Registry serves to help clinicians and researchers better understand FOP in order to accelerate the development and availability of diseasemodifying therapies and is also a great resource for practitioners to publish and help elevate awareness about this rare disorder
Participants contributions like yours help the Registry to fulfil our mission Anyone living with FOP is eligible to participate by entering information every 6 months Doctors can also participate in the Registry by entering in their patients clinical information
The IFOPA believes there is power in numbers and the contributions of physicians and those living with FOP will provide a comprehensive insight into the disorder that will enable the community to further research efforts and opportunities to develop therapies
리뷰
- 소프트쉐어 신규 소프트웨어 추가 안내 2025.01.17
- 소프트쉐어 서비스 이용 가이드 업데이트 안내 2025.01.17
- 소프트쉐어 웹사이트 리뉴얼 안내 2025.01.17